Coffeerooms drugstore.com, inc.

CLICK HERE for
Today's Posts
Ry Pepper Photography
Instant Coffeerooms
Welcome
gURLfriends
the Pier
Games and Fun
DayTime TV
NightTime TV
Reality TV
Books
Movies
Music
Arts, Crafts & Hobbies
a Certain Age
Mom to Mom
Beauty & Style
Health & Fitness
Diet Buddies
Lupus
Current Events
Home & Garden
Relationships
The Attic
CLICK HERE FOR
Today's Posts

Go Back   Coffeerooms > Health and Fitness > Lupus > Your Story

Reply
 
Thread Tools Search this Thread Display Modes
  #1  
Old Posted 1.29.10, 6:21 AM
mich77
 
Treacle
Posts: 3
Post lupus/ lung disease

I HAVE BEEN LIVING WITH LUPUS FOR OVER 18 YRS OF MY LIFE. SINCE I TURNED 50 YRS OLD MY HEALTH IS GETTING WORST. LIVING WITH THIS DISEASE IS VERY DIFFICULT. I JUST HAVE A HARD TIME MAKING MY FRIENDS AND FAMILY MEMBERS UNDERSTANDING WHAT I FEEL. BECAUSE THEY LOOK AT ME AND I DON'T LOOK SICK PHYSICALLY. WHEN I'M ALONE AND IN SO MUCH PAIN I JUST CRY JUST TO RELIEVE MYSELF.
YOU NEVER KNOW ONE DAY TO ANOTHER AND I DO HAVE FAITH AND I STAY STRONG BUT, WE ARE HUMAN AND WE DO BREAK DOWN FROM TIME TO TIME.
Reply With Quote
Bare Necessities SmartBargains.com
  #2  
Old Posted 1.29.10, 9:20 AM in reply to mich77's post "lupus/ lung disease"
Annie's Avatar
Annie
Only an expert can deal with the problem
 
Bandersnatch
Posts: 1,513
Re: lupus/ lung disease

Hi Mich! I know exactly how you feel. I was dx'd in '96, so I guess that's 14 years (yikes, I hadn't thought it was that long). I have a good doc who is pretty helpful with the pain end of thigs, but I still hurt all.the.time. I guess there's no way to get rid of it completely. I have come to realize that no one can 'get' what it's like to live with a chronic disease unless they have to deal with it as well. My mom had RA from age 18, so I only knew her that way, but I never really understood the challenges she had until I got tagged by lupus.

I have days that being strong is just not an option. I have a lot of CNS problems and I think dealing with the depression end of it is maybe the worst. So, when it's one of those days, I become some sort of hermit, even in my own house... I just shut down. Not a great solution, but the only one I have that keeps me from being a weepy mess with every word.

Welcome to the boards, you'll be among others who get it.
Reply With Quote
  #3  
Old Posted 1.30.10, 6:08 AM in reply to mich77's post "lupus/ lung disease"
mich77
 
Treacle
Posts: 3
Re: lupus/ lung disease

Dear annie,
thank you for sharing your story with me. It makes me feel better knowing that you understand what i'm going through. I do appreciate. I have ra also and that is so painful i have lived with for years and years. Again just another one of my problems to deal with day in and day out.
Thank you
mich
Reply With Quote
Reply

Bookmarks

Go Back  Coffeerooms > Health and Fitness > Lupus > Your Story Reload this Page lupus/ lung disease
Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Forum Jump


All times are GMT -4. The time now is 2:15 AM.


All Coffeerooms™ content copyright © w3PG, inc.
Powered by vBulletin® underlying code
copyright ©2000 - 2014, Jelsoft Enterprises Ltd.