Re: lupus/ lung disease
Hi Mich! I know exactly how you feel. I was dx'd in '96, so I guess that's 14 years (yikes, I hadn't thought it was that long). I have a good doc who is pretty helpful with the pain end of thigs, but I still hurt all.the.time. I guess there's no way to get rid of it completely. I have come to realize that no one can 'get' what it's like to live with a chronic disease unless they have to deal with it as well. My mom had RA from age 18, so I only knew her that way, but I never really understood the challenges she had until I got tagged by lupus.
I have days that being strong is just not an option. I have a lot of CNS problems and I think dealing with the depression end of it is maybe the worst. So, when it's one of those days, I become some sort of hermit, even in my own house... I just shut down. Not a great solution, but the only one I have that keeps me from being a weepy mess with every word.
Welcome to the boards, you'll be among others who get it.
Only an expert can deal with the problem