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CHRISTINEHASLUPUS
4.24.09, 11:47 PM
I had a very stressful event happen in my life then two weeks later; I woke up one morning and could not walk. My joints were so sore and swollen. I had no clue what was wrong! I spent the next 3 years going to the doctors, having every test possible only to have them tell me they didn't know what was wrong. I do not have the butterfly rash on my face; therefore, it was not that obvious. I had unexplained fevers and extreme fatigue. It was not until my allergist found something in my blood work and flagged my doctor that I could have Lupus...Lupus? What the heck is that? I researched in my medical book which happened to be ancient but gave me quite a scare. I went through a couple of rheumatologist until I found The Lupus Center of Excellence at Magee Women’s Hospital in Pittsburgh PA. There is also a research lab there that I try and fund-raise for. I am owner/designer of my jewelry company called SimplyStrungTogether.com. There you will be able to find a blue crystal bracelet with a blue crystal butterfly. If purchased, 50% of profits will go to the research center in hopes of a cure. I also am a Co-facilitator for a Lupus Support group here in Greensburg, PA where one of our goals is to update our libraries with current books about Lupus because while it is a serious disease, it does not need to be a death sentence. Will write again…take care Lupus Buddies!

Ambivalence
8.26.09, 11:09 AM
hi christine..i see you posted several months ago. when i first signed up here it is the reason that i left because there aren't enough people posting that you can talk to and responses take so long, you never know when someone will respond to your post. anyway, i just wanted to let you know i read your post, im sorry you have lupus. i have it myself and got it the same way, right after my spinal fusion surgery. i have since then had pleurisy, pericaditis, all sorts of issues and nephritis. it would be nice to hear more of your journey. i am on ssd now and im only 41. it is difficult and wonder where you are in your journey with lupus.
hope to talk to you soon.
ambivalence